Media

Minnesota family fighting for daughter with ultra-rare genetic mutation, others like her

Thank you WCCO & CBS News Minnesota and David Schuman for helping us bring awareness to CTNNB1 Syndrome and to hear our story!

On Insight 7, we meet a local family on a path to making change

Thank you Town Square Television for sharing our story and for your heartfelt support. You all are so sweet and very special to our family.